Wednesday, November 13, 2013

Unbelievable!

I was trying to think of the perfect title for this post but I think the best word to describe the news we got yesterday is Unbelievable!
We saw Dr. Prince (Surgeon) on Friday and he was so happy with how Philip looked. He ran some blood tests to see where we were at with Philip's numbers.
We had an appointment with the GI on Tuesday so they gave us the results.
Drumroll please………………………………………………...
His Bilirubin numbers are 1 / .7 !!!!!!!!!!!  Basically within a normal range! Just a few 1/10ths off.  His other numbers are still a little elevated but are dropping so they are happy with that. He also gained weight which has been a struggle for him in the past. He is up to 13lbs 6 oz.!  He is also being weaned off his steroids which is awesome. Can't wait to have one less medication to give him.
I could barely contain myself after that appointment. I had to run some errands after and I wanted to tell everyone I saw about the news. I would just think of it and start to choke back tears of happiness.
It's really been amazing the last few weeks watching his skin color slowly turn more pink. And especially his eyes become white because that is always the part of him I would gauge his yellowness by.  Dr. Prince said we just have to wait and see how long his body will sustain this. And the GI's said our focus now will be for him to continue to gain weight and grow.
When this all began it was hard to believe that things could go this smoothly. I am afraid sometimes of the rug being pulled out from under us or jinxing it by talking about how good things are going.
All I know is he is one strong baby and the room lights up when he smiles.
Thank you to everyones continued support and thoughts and prayers. Who knows, but I think all of those positive thoughts and prayers have somehow worked and helped him get through this. I know they have helped us.