Obstruction

Well, it's been a crazy few days since the last post. Unfortunately, Philip did not improve overnight on Monday so Tuesday, they decided to do a CT scan. He continued to vomit green bile and Because he couldn't keep anything down and they needed him to take some oral contrast, they inserted an NG tube which goes up his nose into his stomach. They were able to suction his belly for a while and that made him feel better too. At this point they started thinking he had a bowel obstruction. The first treatment for that anyway is to decompress/suction with the NG tube in hopes that if it was an obstruction it would correct itself. So inserting it was helping either way. He had his CT scan done and indeed they found an obstruction.
His team from Mt. Sinai were contacted and they wanted him transferred that night. So me and Philip  got a special ride over in an ambulette. Wednesday was a lot of the same hoping the decompressing would help. Unfortunately the surgeons looked at the scan and believed it needed surgery. So we were told surgery would be Thursday. That morning the 1 of 2 surgeons who can perform Philips surgery he needed, was called for and organ procurement. And that surgery when he got back was a 20hour surgery that had to take place, can you imagine 20hours!!! So they weren't sure if they could get OR time in order to squeeze Philip in around that major surgery with the other surgeon.  So last minute they came up to our room and said he's going down in about 1/2 hour. As soon as he saw them come to the room with the other bed to take him down, he said I feel better Mom. He knew something was up. He was very nervous and scared going into the OR and because he hadn't been suctioned while we waited, he threw up all over himself. They had to change him and the OR table. Surgery went well and basically he had a "blind loop" of intestine that attached to another part of the intestines. A blind loop is kind of a little pouch that forms to the side of the intestine and his little pouch drooped and connected to another part of the intestine. So they detached it, cleaned off the pouch and cleaned up the adhesion.  There is a little speculation that this had been happening intermittently and could have been the cause of the long diarreah stretch he had a few months back. He is quite uncomfortable but woke up this morning wanting to walk to the play room. So we sat him up and he took two steps and he realized it was a little too much for him just yet. He's a little too scared to try again but he'll sit up in bed and play a little before he gets tired and wants to just lay down. So now we just wait for his bowel function to restore which means yes, I am basically sitting around all day waiting for him to fart. LOL
After that they can take out the NG tube and he can start eating. He hasn't eaten anything really since Sunday. We were playing before and any food commercial that came on he would say hold on a minute I have to watch this. He watched one commercial and kept licking his lips. He said Mmmmm. Garlic Knots. I like garlic knots. Bud, you can have all the garlic knots you want when we get home. You've earned it! He's such a trooper and continues to give little smiles through the pain.

Jinx

Every. Single. Time.
Seriously. Every time I say anything about the fact that Philip is doing good, I jinx it.
After a nice day celebrating Philips birthday. He was up on and off the whole night with belly pain.
Then at 5am it began.
He proceeded to vomit every 20 minutes or so for the next 4 hours.
I knew the call had to be made and we were sent to the ER for Fluids.
The poor guy had belly pain all day. They ran every test, X-ray, ultrasound and blood work and all came back ok. They seem to think it's just a stomach bug, but if you ask Philip, it's from the nose of the angry bird cupcake I made him for his birthday!!LOL
So since he was still vomiting at 7:00pm and not able to keep anything down, they kept us overnight.
They are giving him some bowel rest, which means no food and limited drinking. We are hoping with the rest, he improves and we can go home. If not, they worry about something called intessuception, which is when a part of your intestine slides into itself kind of like a telescope. All imaging points to that it's not that but if he doesn't improve we'll have to think that it's a possibility. So please keep praying for Philip and that he improves overnight.

Happy 4th Birthday!

This hasn't been the easiest year for us or Philip, but in true Philip fashion,

every day he continues to amaze us in every way possible.
His strength, resilience and ability to make us laugh makes me so proud to be him mommy.

His personality continues to crack us up daily and his love for life is inspiring. 

Keep being you Philip! 

Also, his health continues to improve and I can only hope this next year, it continues that way.