This is the sound I heard 3:45am this morning. I woke to Philip gasping and gagging. I got up so fast without my glasses, grabbed a bucket (good thing I didn't grab a bed pan Haha) and ran to his bed, sat him up and put the bucket under his mouth just in case he was vomiting. I thought, oh boy here we go.
I rang the call bell, grabbed my glasses and it was then that I realized the tape came off his face and his NG tube was half way out. He continued to gag as the nurse came in, and I showed her. She turned the suction off and called the resident in the room. The tube was probably suctioned up in his esophagus and that's why he was gasping. The resident tried to push the tube back in but Philip said "I don't want that" and starting fighting the doctor and in the flailing of hands, he managed to get himself in between the hose and with a swift arm swat, the tube came all the way out! Like he was saying, if you don't take this out, I will!
Thankfully, they decided to see how he did overnight without it and he did ok. Surgery came in this morning and being that he finally pooped and did ok overnight they allowed him to start a clear diet. Woo hoo for chicken broth and jell-o! So now we wait to see if he can advance further to a soft diet tomorrow.
We also had a special visit from Danny today! It's hard to really know how Danny handles all this stuff with Philip and me away for so long. He just goes along with what needs to be done, but he finally told Dan that he hates when we are in the hospital and he has to go back and forth to everyone's houses. To be honest, I never though it bothered him much because he never says anything. I feel so bad that I've kept him away from the hospital settings for so long now. He's visited occasionally in the past but Maybe I should have let him come more often. I guess I've always relied on the fact that it's easy for me to trust he's taken care of with mine and Dans parents. And he is, and he loves them but now I see how deeply it does affect him.
He was so happy today. We were able to go out to lunch just the two of us. He and Philip played and Philip was able to bring him to the playroom and The Zone today. It really lifted Philips spirits. It was so nice to see them smiling and laughing together. Danny didn't want to go home. He declared that he's coming back everyday this week!
