kidkennelly philip: May 2018

Today is Philip and Dan's 2 year Liversary! I can't believe its been 2 years already.
And I can hardly believe it's been almost 6 months since my last post. And that's basically because life's been pretty quiet on the health front for Philip. Actually, Things have been pretty great. Its been 9 months since Philip has had a hospital visit; the longest stretch since he was born. It's pretty incredible. I'm getting used to being able to watch him at home instead of running to the hospital. I am waiting for the day when I will feel like I can completely relax and just worry about regular kid illnesses with him. But the truth is, I'm pretty sure it may never come and I'm ok with that. I still catch myself checking his eyes everyday to see if their yellow. Or if maybe his skin looks yellow. I'm afraid I might get complacent in this new life and miss the signs of rejection or something else. Health wise, His labs have been great the last 6 months. Unfortunately because he's been on antibiotics so many times, he recently had a bout of C-DIFF that resolved quickly. I hope that never comes back but he is more susceptible because he has been on antibiotics so many times.
We are enjoying expanding Philip's world and taking him more and more places. He's experienced so much the last 2 years that I always wonder if he would have been able to if he didn't have transplant. How sick would he have gotten? I shake that thought off often. I thank God everyday for living donation and Dan for giving Philips such a precious gift. And I continue to thank family and friends who continue to offer prayers and all kinds of support, 2 years later.
Here are some of Philips adventures over the last 6 months. He is such a fun kid. He has a great personality and just loves living life to the fullest!