Monday, September 23, 2013

Green is my new favorite color!

So as the doctors hoped, the last couple of days were pretty uneventful. We were able to start him on pedialyte yesterday. 1oz every 3 hours. Now this is for a baby who was eating 6 oz every 4 hours before his surgery. Needless to say that Philip did not like being teased with such a little amount of  liquid. He was pretty unhappy all day and hard to comfort. It was a really hard day and night for me. I mean, it isn't natural to not feed your baby when they are hungry. But, They let us increase to 2 oz later in the day and today he was able to start his regular formula. He was so happy and talkative today. It made my day. The doctors may remove his JP drain this evening or tomorrow morning.
They even said we may go home tomorrow!!!! Now your probably wondering why my new favorite color is green...Philip had two dirty diapers yesterday and they were GREEN!! For those who don't know, one symptom of Biliary Atresia is acholic stool(Stools that are pale, clay, or putty-colored may be due to problems in the biliary system (the drainage system of the gallbladder, liver, and pancreas)
We switched Philips formula so many times I never thought the change in stool color signaled something else. His surgeon said this is a good sign that bile was flowing but we can't be sure if it is due to the surgery itself or the real deal as he called it. Ill just keep praying for green poop!
I really can't say enough about our surgeon. He has such a special way of keeping us grounded about  this working but at the same time keeping us hopeful and optimistic. So hard to put into words. A lot of people (visitors, nurses, etc) have been telling us how Philip's color looks so much better, it is hard not to get excited. But we brought it up to Dr. Prince and he said a lot of times people want us to feel better so they say it. He said they may actually truly believe they see a difference because they want to feel better as well. And as doctors and nurses it is in their nature to want to help too and want us to feel better and they don't know what else to say.  But the truth is that his skin and eyes will be the last thing to change back most likely. And we are ok with that. That being said I totally think his feet and hands look more normal color today. Lol

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