Philip got his PICC line inserted yesterday and it went well. It wasn't the most stable position but in far enough where they were comfortable sending us home and having home care teach us to do the infusions of his antibiotics. This morning they changed the dressing and sent us on our way with the line out 3cm. We got home around 12:30 and the pharmacy dropped off the supplies by 1:00 and the home care nurse was over by 1:30 to start. Philip's dressing was saturated in blood so she had to change it again before we could start the infusion. So while my poor sister and Dan held him down she proceeded to take the dressing off. I won't begin to tell you you the screams he was making from the tape being taken off. One word...Horrific. I thought I saw the line come out a little but she measured and said it was the same as what was in his discharge papers. She cleaned and redressed the site and tried to flush it but met resistance and saw that fluid was coming out of the entry site at the skin. So she had to undo the dressing again to evaluate it to make sure there were no kinks. More screaming for poor Philip. So after a few calls we were sent back to the hospital for the PICU team to evaluate it and see if it was salvageable. So off to the hospital we went at 2:45 where they undressed the site again. This time I held him down screaming. His poor skin was so raw at this point. They measured the catheter and it was 8cm outside now. Meaning only 10 cm were inside his body only reaching to his shoulder. Not far enough in to do its job properly so they had to take it out completely. The purpose is to have it snake far Into his body closest to the center like where his heart is. So we were readmitted and brought up to our room, Which is in the new pavilion and is private so we were happy about that. Now they had to put in yet another IV so he can get his antibiotics till we figure out what to do. 3 STICKS to get the IV in this poor baby. Enough already!!!! How much can this poor baby handle??! I just can't anymore. I wish they could stick me. He 's getting wise to what's going on and knows if I put him down someone will most likely be poking and prodding him. Just frustrated all around. Tomorrow we will decide if we should try a PICC line again or just go for the neonatal line and stay in the hospital or do multiple IV sticks over the next couple of weeks. Let's hope whatever happens, things go a little smoother from here on out.
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