Thursday, April 30, 2015

Liver Life Walk 2015

Family and friends came together once again for the Liver Life Walk Long Island on April 26th.
It was another amazing day and I can't really seem to find the words to convey how appreciative and thankful I am for everyone who showed support by walking with us, cooking food, coordinating drinks, setting things up, taking them down and monetary donations. And a special Thanks to the FDNY Corona Tigers and  Massapequa Fire Departments, your efforts and support go way beyond what anyone could expect. If I didn't get to thank you personally that day, Thank You! Know that each and every one of you are deeply appreciated.

Philip's health remains stable at the moment and we find ourselves just playing a waiting game majority of the time.
Waiting for his next fever.
Waiting in doctors offices and emergency rooms.
Waiting for lab results.
Waiting for the next endoscopy.
Waiting for him to get sicker and need a transplant…
Just stuck, waiting in one spot, not able to move forward.

Participating in this walk has made me feel like I am doing something really meaningful. Something that can really help. Moving forward in a sense, while we are just stuck where we are. Waiting.

Together, you helped raise $7,743 and the donations keep coming in. 
You have made this as successful as it has been. 
Thank you again from the bottom of our hearts. We really can't say it enough for the support that has been show to our whole family.


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