He has been weaned off several of his medications and now is only on Prograf, prednisone, pepcid and asprin. They just took him off one of his anti-rejection medicines called Cellcept so he needs bloodwork in a week to make sure his body is handling it well and if all is good we can wait three weeks to repeat. I remember coming home from the hospital feeling overwhelmed with all of the medication saying how the heck am I going to do this?!! And here we are just 12 weeks later with only 4 meds. We now get to spread our trips to his transplant doctors to every month. I really love his doctor. She remembered he loved his muffins, so for his birthday on this last visit she had muffins waiting for him. He was so excited.
I am enjoying watching Philip get to enjoy his summer and have his visits and blood work get spread out but at the same time I feel the worries in my head start to push into the foreground a little more. I mean he looks and acts great but the proof is in the bloodwork and to have to wait it out gives me anxiety. I just have to have faith in the fact that I know what to look for and can read him easily and if something were going on I could probably notice early enough. I am loving our new normal and hope we can keep it for a long time!
