Dodging a bullet

After Philip's last hospital stay we followed up with his hematologist at Mt. Sinai. His nuetrophil count as well as his hemoglobin remained low and they wanted to start him on a shot called neupogen, to help his bone marrow produce more white blood cells. But they also felt the possible need to explore a little further to make sure his bone marrow was working properly before they started the shots. Although the white cells did increase a tiny bit from prior blood work it still remained low. So when we saw them last week they scheduled a bone marrow biopsy for today and planned to discuss it with Philips's transplant team. So we got a call Wednesday that they discussed it and decided to go ahead and give him the shot and wait and watch before doing the biopsy. Phew I felt much better about that plan. They also mentioned that if he does get sick again they would like us to go to Mt. Sinai instead of Cohens. His prograf levels skyrocket every time we are there and it takes forever to get levels back and we end up chasing the correct dose after discharge. Dan and I had actually discussed that before they asked and we would be much more comfortable there anyway. 

So we got to clinic today and got some labs drawn before they started the shot. While we waited with Philip in the playroom, she came over and sat with us and said "Well I guess all I have to do is talk business with Philip and he makes white blood cells for me. His count is in the NORMAL range!".

Wait, WHAT? LOL His numbers are normal!! No shot?! This is amazing! And wait, He can go back to school?!! Yup! 

When we told him he could go back to school, You could see he was so excited too. Maybe he just fed off of our excitement but he was squealing and talk, talk, talking away. He said mom I'm so proud of you! Which usually means he's excited. I am so excited for him.

I also got a call that his prograf level was low, so we adjusted his dose. I'm hoping that his numbers didn't increase just because his level was low. 

I hope things continue in the right direction and I can't wait for him to go back to school on Tuesday!

Fingers crossed he stays healthy from here on out!